Clay and Dylan were both born with a rare disorder called Hirshsprungs Disease, which means there are no cells throughout their entire colon and most of their small intestine. They have only a small segment of intestine coming out of the stomach which is not good, this causes severe malabsorbtion and is a lifelong chronic condition. It requires them to be feed daily with IV fluids called TPN (total nutrition) and Lipids (fats). They both have ostomies and it is very difficult for them to gain weight. They have to spend much of their childhood in the hospital because the IV is so easily infected when they are children with such a short gut. The IV must be treated with very powerful antibiotics or the line must be replaced if the infection cannot be treated. The baby has very few sites left. The family has been in communication with a hospital to discuss a small bowel transplant which could help with absorbtion but are not sure that this is a truly good option because they are not sure of how successful the surgery would be. This is considered a trial and error type surgery with only minimal success.